I thought I would tell you a little about what I've learned about Aaron and Kevin's skin disease. It's called Epidermolysis Buloma Simplex Weber Cockayne. You can go to the debra.org site if you are interested. There's a good description and pictures. Aaron hates it, as you can imagine, and sometimes cries and asks God why he has it. We've talked through this and will continue to do so, I'm sure. The neat thing is that tonight we were on-line and found a neat blog by a girl who is 16 and also has it. She finds her life in the school band, much like Aaron. Aaron had a particularly bad day today, so it was a real blessing to find this little, short blog.
Aaron, in case you haven't heard me crow, is an amazing young bassoon player. He really, really has it. We've decided that if he were running and playing sports all the time, he would have perhaps never discovered that he has this gift. So, that's the way we rationalize it, and it seems to help quite a bit.
FYI, Will is doing well in his new school. Trying to figure out how to afford to send Aaron as well next year. I had planned on paying off the house in the next couple of years. That plan has gone the way of the Yugo.
How are y'all?
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